Ichthyosis is a hereditary skin disease in which the skin grows 10 times faster than usual.
This will lead to the constant tearing and bursting of the skin. The tearing can be very painful and is especially prone to infection. It is a sad fact that most who have this disease, will end up dying during childhood. An exception to this is 22-year-old Mui Thomas from Hong Kong.
When volunteering at a hospital twenty some years ago Tina and Roger Thomas, emigrants from Germany and Great Britain were taken aback by this little baby. It was puzzling for them as to why she was destined to be placed in a home for the mentally disabled, when her mental functions were fine.
was destined to be placed in a home for the mentally disabled, when her mental functions were fine. Roger had the following to say regarding their feelings about Mui being taken away:
“There she would be hidden from society. But she is mentally completely healthy. We now had to make a decision.”
They decided to adopt the girl child.
Mui has actually become a strong and happy young lady regardless of the stares and questions about her condition.
Mui used to get bullied badly during her school days. There were even some parts of the school she wasn’t allowed to enter as one boy claimed that she frightened him.
“A lady once spat in my wife’s face and accused her of having burnt Mui. But we have always shown her how important it is, to enjoy the world, to use the day. While you never know, what’s waiting just around the corner.”
Mui now works as a teacher in Hong Kong for children with learning difficulties. She’s serves as a rugby arbitrator and also extremely athletic. Rugby is a great passion to Mui. Her aspirations with the sport include blowing the whistle in the international games.